Saturday, December 3
10 am to 2:30 pm
Charles B. Wang Center
Room 201
Stony Brook University
and via Zoom
We know how valuable it is for those living with Huntington's disease and their caregivers to come together to gain strength from shared experiences. This LIVE hybrid event provides our Huntington's community with an opportunity to learn more about this hereditary disease and gain information from our team of experts. Our speakers will cover a range of topics including pathology, nutrition, psychology, neuropsychology, fertility, research and more.
Advance registration is required. Upon registering, you will receive a confirmation email. For those attending in person, refreshments and lunch will be served. For those attending virtually, your email confirmation will contain information about joining via Zoom. Questions? Contact Erin Harabes, LMHC, at (631) 444-3448 or erin.harabes@stonybrookmedicine.edu.
For accessibility-related accommodations, please call (631) 444-4000.
Presenters:
Alison Bartlett, Esq.
HDSA Disability Manager
Craig Beale, MA, Speech and Language Pathologist
HDSA Center of Excellence at Stony Brook
Josephine Connolly-Schoonen, PhD, Registered Dietitian
HDSA Center of Excellence at Stony Brook
Leora Fox, PhD
HDSA, Assistant Director of Research and Patient Engagement
Dodie Gillett, PhD, Clinical Psychologist
HDSA Center of Excellence at Stony Brook
Brian Lebowitz, PhD, Neuropsychologist
HDSA Center of Excellence at Stony Brook
James Pollard
Author of Hurry Up and Wait
Wes Solem, ScM, LCGC
Licensed Certified Genetic Counselor, HD Genetics
Ronnie Steiner
Family Representative
James Stelling, MD, FACOG, HCLD
Island Fertility
This event is funded by the Huntington's Disease Society of America (HDSA) with support from:
Genentech, Sage, Neurocrine and uniCure.
